Concerned wife
New Member
Ratbag (I hate typing that!), well, guess what?
We found out today that it wasn't that my husband's doctor wasn't concerned about the numbers. He just wasn't paying attention. You said your doctor and hematologist weren't concerned because your platelets were low but in range.
Do you have any information you could share, that I could share with my husband's doctor? His HCT is 56 but his ferritin is only 50 and that's after avoiding dumping blood for a long time now. His nurse today said he wants my husband to go every 2 weeks until HGB is under 16. Why?! It's only just past 18 now which is still listed as normal on the labs. My husband will feel like garbage again if he goes and off-loads that much blood and yet, he needs the testosterone. We feel very stuck. He's going to feel like crap to get rid of that much blood and also like crap if he has to discontinue testosterone. Lowering the dose NEVER lowers those numbers (RBC, HGB and HCT).
How did your doctors determine that you had erythrocytosis rather than polycythemia?
I also did not understand about your bleeding condition. My husband also bleeds freely but I thought it was because of the lumbrokinase, nattokinase and serrapeptase we give him. Is there a reason for yours?
ANY INPUT YOU CAN GIVE ME WOULD BE APPRECIATED. Thanks!
We found out today that it wasn't that my husband's doctor wasn't concerned about the numbers. He just wasn't paying attention. You said your doctor and hematologist weren't concerned because your platelets were low but in range.
Do you have any information you could share, that I could share with my husband's doctor? His HCT is 56 but his ferritin is only 50 and that's after avoiding dumping blood for a long time now. His nurse today said he wants my husband to go every 2 weeks until HGB is under 16. Why?! It's only just past 18 now which is still listed as normal on the labs. My husband will feel like garbage again if he goes and off-loads that much blood and yet, he needs the testosterone. We feel very stuck. He's going to feel like crap to get rid of that much blood and also like crap if he has to discontinue testosterone. Lowering the dose NEVER lowers those numbers (RBC, HGB and HCT).
How did your doctors determine that you had erythrocytosis rather than polycythemia?
I also did not understand about your bleeding condition. My husband also bleeds freely but I thought it was because of the lumbrokinase, nattokinase and serrapeptase we give him. Is there a reason for yours?
ANY INPUT YOU CAN GIVE ME WOULD BE APPRECIATED. Thanks!