Joe Sixpack
Active Member
BTW Orrin, did you have to get a catheter at any time for this procedure?
BHP and Prostatic Artery Embolization (PAE) - MY STORY
- Thread starter OMI100
- Start date
If you are asking did they cath Mr. Happy
NO!A cath in my wrist that was snaked down to the prostate to place the beads but NOT in Mr. Happy
Joe Sixpack
Active Member
Yes I was asking about Mr Happy! Thanks Orrin. I appreciate you taking the time to document your experience. I think a lot of us are interested in how it goes for you.If you are asking did they cath Mr. Happy
A cath in my wrist that was snaked down to the prostate to place the beads but NOT in Mr. Happy
DaytonaJonah
Active Member
Orrin, would like to read an update on your prostate condition now that it has been nearly a year after your PAE.
I'm now considering the procedure and would like to know if your stream strength returned and do you have any sexual sides from the PAE?
Been meaning to update so here goes:
This is a long story and I will try to shorten it down:
Was having some lower back issues and CT was schedule.
01-18-2021 – CT scan. Scan identifying bladder stones and small kidney stones. Sent report to my urologist and asked input and suggestions. Office contacted me about having them removed on 01-29-2021. Based on my last similar issue (had stones removed bay same DR a bit back) I felt comfortable going forward and have the procedure done.
01-29-2021 - I had bladder stones removed once before and when I woke, I was discharged and took my designated driver out to eat. This time a woke with a foley cath and leg bag and the nurse giving me the large HOSPITAL bag to use at night. Post OP instructions were minimal.
I used the HOSPITAL bag almost full time and only once or twice did I leave my home with the leg bag. When I did it seemed to increase blood in the urine. HOSPITAL bag seemed to minimize somewhat the blood in the urine. Stayed home on sick leave till the next appointment. At no time did the urine get clearer than fruit punch color.
02-05-2021 - Afternoon appointment at DRs office to have cath removed. Leg bag CLEARLY had a LOT of blood still being discharged into the bag. Cath was removed anyway.
02-05-2021 – Around 1700 that day I was at the local Medical Center ER having the cath put back in as I was unable to pass urine. Advised to let DR know on Monday.
02-06-2021 – Back in ER AT AROUND 1730 as cath had gotten blocked and I was unable to pass urine again. Cath was flushed to remove a clot.
02-08-2021 – As I recall I contacted the DRs office and advised what had happened over the weekend. I was contacted and advised to keep the foley in and come in to the office on 02-15-2021.
02-14-2021 – Another trip to the ER in the afternoon due to blocked cath.
02-15-2021 – Arrived for my appointment with the leg bag on. I think the intent for this appointment was to remove the cath and the stent that was inserted at the time of the procedure that was done on 01-29-2021. DR looked at the bag and said he could not remove the stent as he would not be able to see it due to all the blood (my interpretation). Things got quiet after that as I asked what the way ahead was, as I still had a cath and there was still bleeding. There was no clear answer and I was unsure what had gone south and why.
I did mention to the DR that I had a phone follow-up with the DR that had done the PAE and he indicated that If I had been up in the Chapple Hill area, he could have done another PAE and might have been be able to resolve the bleeding issue (my interpretations). As I recall I gave the DR a copy of the PAE operative report so he would be able to understand what had been done. I was leaving all options open at this point.
02-15-2021, 02-17-2021, 02-22-2021 and on 03-02-21 – Questions posted on the Patient Portal.
Later that day at home (02-15-2021) I collected my thoughts and posted some questions to the Patient Portal.
No response.
I posted additional questions with no response.
I was getting very frustrated as I was still on sick leave from work and still had a cath in and NO clear idea of what went south or a way ahead. I did get a bit aggressive with folks DUE TO NO RESPONSE TO ANY OF MY QUESTIONS.
Due to lack of ANY response from current DR I did reach out to UNC to get on schedule for another PAE to stop the bleeding.
02-19-2021 – I became very frustrated sitting in my recliner with a hospital cath bag and NO responses to ANY of my questions and with NO clear resolution in sight I reached out to the local Hospital in the morning and indicated I wished to file a grievance against my DR. Hospital said that the DR was not staff to the hospital but they would relay my concerns to the DRs office.
Around noon I received a call from 2 individuals from the DRs office and they asked what my concerns were. I explained my concerns with NO clear solution to the situation at hand and my frustration at receiving NO responses to my questions that I posted on the patient portal.
DR finally called me at home that Friday (around 1730) and he was extremely upset that I called the hospital and that I had wasted 1 ½ hours of his staff’s time on phone calls. I explained my concerns about lack of information and NO responses to my questions and my concerns about solutions and any impact local solutions would have on the PAE that had been done. I provided him the name and number of the physician that had performed the PAE at UNC and asked that he, at least, contact him and discuss my current situation and determine any impact on the PAE based on what he had done and any future impact based on anything that he might be able to do locally to resolve the current situation.
02-22-2021 – DRs surgery nurse called and said that the DR could do another fulgurization on Wednesday to stop the bleeding. I asked if I would still need the PAE I had scheduled. The nurse said YES. I asked if the PAE would resolve the bleeding issue and would I still need a fulgurization. The nurse said she did not know. I asked her to ask the DR to call UNC and speak with the DR that did the PAE to determine if a PAE would resolve the issue at hand.
02-23-2021 – DRs office called and said that the DR had reached out to the DR at UNC that did the PAE and they both felt that another fulguration was need and could I be at the local Hospital Outpatient facility that Wednesday. I said yes. I then CXLED my scheduled second PAE based on the above.
02-24/25-2021 - Arrived with my designated driver expecting an outpatient procedure but the DR had me admitted overnight with a bladder flush till around 0930 on the morning of 02-25-2021 when the cath was removed.
DR said that it was apparent that I had lost confidence in him and that I needed to find another DR AFTER THIS. I understood that to mean that he would not see me or interact with me at any level once I was discharged that morning.
Discharge paper indicated NO follow-up appointment. I was discharged with minimal post op instructions on what to expect, such as need for pads and incontinence, etc. after having a cath in for a month.
2-25-2021 – CERTIFIED LETTER was sent to me stating that “the DR has terminated our patient/physician relationship and will no longer be able to treat me effective 25 Feb 2020, with the exception for emergency care only up to 25 March 2020”.
02-25-2021 TO 03-21.
I went back to work BUT spending as much time running to the latrine to change pads as I do at my desk now.
03-23-2021 – I had a 3T-MRI done at the Bush Center in Alpharetta GA. to try and determine what was hosed up.
Based on a quick look of the scan (my interpretations of what was said):
Prostate still completely engorged with leaked blood.
pooling urine in the urethra section that goes through the prostate.
May be some damage to the urethra.
May be some damage to the sphincter muscle between the bladder and prostate.
May be 8 to 12 weeks before things completely heal.
Then return for another scan and see what it all looks like then.
03-21 – Finally had an office visit with my NEW URO. He indicated that he had planned to do a scope and see what things looked like, but after reviewing all that had been done he said that was not advisable. I told him that I had seen DR Busch for an MRI and DR Busch said it would be 8 to 12 weeks for everything to heal and get back to normal before he could do another MRI. Currently the prostate was still engorged with blood, and the blood would have to be reabsorbed back into my body to get a clear MRI. NEW URO agreed with that. I was given a prescription for medication to help with the bladder spasms and it was agreed to set up a follow-on appointment in 2 to 3 months and then re-evaluate the situation.
03-21 – I also had a tele consult with a URO from UAB. We discussed my current situation and he agreed with both DR Bush and my new URO that we needed to wait 2 to 3 months for healing to take place and then see. I expressed my concerns to him about the possibility of damage to the sphincter muscle going into the prostate. I explained to him my dealings with incontinence and he said it appeared that the sphincter muscle may not have been damaged and my main issue now was bladder spasms. Reevaluation after 2 to 3 months to reassess my situation was warranted.
05-02-21 – Things seemed to be improving with less bladder spasms. Having enough time to get to the toilet to pee about 75% of the time. Still have about 25% of the time when I do not have time to get to the toilet. Still getting up every 1 to 1.5 HRS at night to pee. Seems to be getting longer between urges to pee. Use of pads has been reduced, but I still need them for about 25% of the time now.
Last week or so I started having fresh blood clots and bloody urine when I start to pee. Sometimes a lot of blood and clot at the start and other times a minimal amount of blood and clot. I stopped my blood thinner on 04-30-21 to see if that might eliminate the blood and clots and let wherever the blood is coming from heal. After about a week blood clots stopped and the bloody urine also stopped.
05-18-21 – Getting bloated during the day and seem like I am not voiding bladder completely as am out voided each time does not seem to be much. Less than a minute each occurrence. Still having strong urge to pee during the day and am able to make it to the bathroom most times (+80%). At night still getting up 7 to 8 times to pee. Same as the day if I get up when urge hits I can get to the bathroom before having to urinate into the pee pad most times. Have a follow-on prostate MRI scheduled for 9 June. Will ask DR S if enough time has expired for all to heal so a “good” MRI can be taken.
UPDATE 06-09-21 – Had early 0815 appointment with DR. Busch. Arrived and did some paperwork and they had me drink 3 bottles of water to get my bladder full. After the 3 bottles of water, and a short wait, got prepared to have an MRI. MRI finished about the same times as the urge to urinate was starting to get intense.
Went to the restroom and emptied my bladder as much as I could and then back for another MRI.
Completed the second MRI and back to the waiting room so DR. Busch had some time to evaluate the 2 MRIs.
Was called back to DR. Bush’s office and he went over the 2 MRIs with me. My interpretations of what he said were:
UPDATE 7-5-21 – Staring on 7-4-21 change in urination amount and bloating. Recent frequency has been on average 1.5 to 2 HRS apart at night but prior to 7-4-21 a significant amount of urine was eliminated at those times. Now minimal urine is released. It seems that I have started to “retain” urine, but release enough to eliminate the “urge to pee” feeling. I did have a very minimal amount of blood staining a few days ago. I am wondering if there is some plugging that is holding back the free flow of urine now. Has not got to the point that I have had to make a trip to the ER yet.
7-8-2021 – Had DR appointment with new DR. Issus of the last few days seems to have corrected itself and I do not appear to be retaining urine at this time. Appointment went well and will see DR in six months pending no issues developing between now and then.
7-24 2021 - Was peeing blood yesterday. Bright red with clouts at the start of the day. Seems to have resolved itself overnight as no blood or clouting seen today. Frequency same. Every 1.5 to 2 HRS.
TODAY (8-11-21)- Still getting up every 1.5 to 2 HRS at night to pee. Not wearing the depends but still use one pad a day to catch any leakage. Seem to be getting better verrrrry slowly and have no idea if I will ever get back to where I was at.
THOUGHTS - OLD Dr said he could not get into the bladder to take care of the possible kidney and bladder stones with out doing what he did (TURP). IF I had known that I would NOT have approved that procedure.
Original PAE was helping, but the UNC DR did advise that due to the size of my prostate a second PAE may be required. I was good with that and I would have done that again in a heart beat as opposed to the TURP.
My OLD URO apparently had no idea what a PAE was and the horrible outcome that would develop after doing a TURP.
Based on my experience with a TRUP I would never recommend that unless it was absolutely the last option on the table.
I am still considering my options and will see where things are in another month or 2.
To your questions:
1. Stream was getting better but one factor is size of your prostate (mine was around 200gms) and more than one PAE may be required for a LARGE PROSTATE.
2. Good news is that the PAE HAD NO IMPACT ON MR. HAPPY
Hope this helps...
This is a long story and I will try to shorten it down:
Was having some lower back issues and CT was schedule.
01-18-2021 – CT scan. Scan identifying bladder stones and small kidney stones. Sent report to my urologist and asked input and suggestions. Office contacted me about having them removed on 01-29-2021. Based on my last similar issue (had stones removed bay same DR a bit back) I felt comfortable going forward and have the procedure done.
01-29-2021 - I had bladder stones removed once before and when I woke, I was discharged and took my designated driver out to eat. This time a woke with a foley cath and leg bag and the nurse giving me the large HOSPITAL bag to use at night. Post OP instructions were minimal.
I used the HOSPITAL bag almost full time and only once or twice did I leave my home with the leg bag. When I did it seemed to increase blood in the urine. HOSPITAL bag seemed to minimize somewhat the blood in the urine. Stayed home on sick leave till the next appointment. At no time did the urine get clearer than fruit punch color.
02-05-2021 - Afternoon appointment at DRs office to have cath removed. Leg bag CLEARLY had a LOT of blood still being discharged into the bag. Cath was removed anyway.
02-05-2021 – Around 1700 that day I was at the local Medical Center ER having the cath put back in as I was unable to pass urine. Advised to let DR know on Monday.
02-06-2021 – Back in ER AT AROUND 1730 as cath had gotten blocked and I was unable to pass urine again. Cath was flushed to remove a clot.
02-08-2021 – As I recall I contacted the DRs office and advised what had happened over the weekend. I was contacted and advised to keep the foley in and come in to the office on 02-15-2021.
02-14-2021 – Another trip to the ER in the afternoon due to blocked cath.
02-15-2021 – Arrived for my appointment with the leg bag on. I think the intent for this appointment was to remove the cath and the stent that was inserted at the time of the procedure that was done on 01-29-2021. DR looked at the bag and said he could not remove the stent as he would not be able to see it due to all the blood (my interpretation). Things got quiet after that as I asked what the way ahead was, as I still had a cath and there was still bleeding. There was no clear answer and I was unsure what had gone south and why.
I did mention to the DR that I had a phone follow-up with the DR that had done the PAE and he indicated that If I had been up in the Chapple Hill area, he could have done another PAE and might have been be able to resolve the bleeding issue (my interpretations). As I recall I gave the DR a copy of the PAE operative report so he would be able to understand what had been done. I was leaving all options open at this point.
02-15-2021, 02-17-2021, 02-22-2021 and on 03-02-21 – Questions posted on the Patient Portal.
Later that day at home (02-15-2021) I collected my thoughts and posted some questions to the Patient Portal.
No response.
I posted additional questions with no response.
I was getting very frustrated as I was still on sick leave from work and still had a cath in and NO clear idea of what went south or a way ahead. I did get a bit aggressive with folks DUE TO NO RESPONSE TO ANY OF MY QUESTIONS.
Due to lack of ANY response from current DR I did reach out to UNC to get on schedule for another PAE to stop the bleeding.
02-19-2021 – I became very frustrated sitting in my recliner with a hospital cath bag and NO responses to ANY of my questions and with NO clear resolution in sight I reached out to the local Hospital in the morning and indicated I wished to file a grievance against my DR. Hospital said that the DR was not staff to the hospital but they would relay my concerns to the DRs office.
Around noon I received a call from 2 individuals from the DRs office and they asked what my concerns were. I explained my concerns with NO clear solution to the situation at hand and my frustration at receiving NO responses to my questions that I posted on the patient portal.
DR finally called me at home that Friday (around 1730) and he was extremely upset that I called the hospital and that I had wasted 1 ½ hours of his staff’s time on phone calls. I explained my concerns about lack of information and NO responses to my questions and my concerns about solutions and any impact local solutions would have on the PAE that had been done. I provided him the name and number of the physician that had performed the PAE at UNC and asked that he, at least, contact him and discuss my current situation and determine any impact on the PAE based on what he had done and any future impact based on anything that he might be able to do locally to resolve the current situation.
02-22-2021 – DRs surgery nurse called and said that the DR could do another fulgurization on Wednesday to stop the bleeding. I asked if I would still need the PAE I had scheduled. The nurse said YES. I asked if the PAE would resolve the bleeding issue and would I still need a fulgurization. The nurse said she did not know. I asked her to ask the DR to call UNC and speak with the DR that did the PAE to determine if a PAE would resolve the issue at hand.
02-23-2021 – DRs office called and said that the DR had reached out to the DR at UNC that did the PAE and they both felt that another fulguration was need and could I be at the local Hospital Outpatient facility that Wednesday. I said yes. I then CXLED my scheduled second PAE based on the above.
02-24/25-2021 - Arrived with my designated driver expecting an outpatient procedure but the DR had me admitted overnight with a bladder flush till around 0930 on the morning of 02-25-2021 when the cath was removed.
DR said that it was apparent that I had lost confidence in him and that I needed to find another DR AFTER THIS. I understood that to mean that he would not see me or interact with me at any level once I was discharged that morning.
Discharge paper indicated NO follow-up appointment. I was discharged with minimal post op instructions on what to expect, such as need for pads and incontinence, etc. after having a cath in for a month.
2-25-2021 – CERTIFIED LETTER was sent to me stating that “the DR has terminated our patient/physician relationship and will no longer be able to treat me effective 25 Feb 2020, with the exception for emergency care only up to 25 March 2020”.
02-25-2021 TO 03-21.
- Continued incontinence.
- Have to wear pads. Using approximately 15 or more Depend MAXIMUM guards per day along with Depends REAL-FIT underwear.
- At no time was ANY information EVER provided reference side effects, incontinence, timeline to get back to a normal condition, ETC. I had to figure it all out on my own.
- Still have NO idea if the incontinence will ever stop.
- Daytime urge and 10 or 20 seconds later urine is released.
- NIGHT - (10 or 11 till 6 or 7 in the morning) 2 or 3 times per hour and it seems more urine discharges.
- Day urge to urinate MUCH more frequently than at night but same short window.
- MINOR red blood DISCHARGE when theses urges hit has been reduced.
- Two conditions when urge hits:
- At times I still see small pieces of clout and very little urine discharged.
- Other times significant urine discharge as compared to 1 above.
I went back to work BUT spending as much time running to the latrine to change pads as I do at my desk now.
03-23-2021 – I had a 3T-MRI done at the Bush Center in Alpharetta GA. to try and determine what was hosed up.
Based on a quick look of the scan (my interpretations of what was said):
Prostate still completely engorged with leaked blood.
pooling urine in the urethra section that goes through the prostate.
May be some damage to the urethra.
May be some damage to the sphincter muscle between the bladder and prostate.
May be 8 to 12 weeks before things completely heal.
Then return for another scan and see what it all looks like then.
03-21 – Finally had an office visit with my NEW URO. He indicated that he had planned to do a scope and see what things looked like, but after reviewing all that had been done he said that was not advisable. I told him that I had seen DR Busch for an MRI and DR Busch said it would be 8 to 12 weeks for everything to heal and get back to normal before he could do another MRI. Currently the prostate was still engorged with blood, and the blood would have to be reabsorbed back into my body to get a clear MRI. NEW URO agreed with that. I was given a prescription for medication to help with the bladder spasms and it was agreed to set up a follow-on appointment in 2 to 3 months and then re-evaluate the situation.
03-21 – I also had a tele consult with a URO from UAB. We discussed my current situation and he agreed with both DR Bush and my new URO that we needed to wait 2 to 3 months for healing to take place and then see. I expressed my concerns to him about the possibility of damage to the sphincter muscle going into the prostate. I explained to him my dealings with incontinence and he said it appeared that the sphincter muscle may not have been damaged and my main issue now was bladder spasms. Reevaluation after 2 to 3 months to reassess my situation was warranted.
05-02-21 – Things seemed to be improving with less bladder spasms. Having enough time to get to the toilet to pee about 75% of the time. Still have about 25% of the time when I do not have time to get to the toilet. Still getting up every 1 to 1.5 HRS at night to pee. Seems to be getting longer between urges to pee. Use of pads has been reduced, but I still need them for about 25% of the time now.
Last week or so I started having fresh blood clots and bloody urine when I start to pee. Sometimes a lot of blood and clot at the start and other times a minimal amount of blood and clot. I stopped my blood thinner on 04-30-21 to see if that might eliminate the blood and clots and let wherever the blood is coming from heal. After about a week blood clots stopped and the bloody urine also stopped.
05-18-21 – Getting bloated during the day and seem like I am not voiding bladder completely as am out voided each time does not seem to be much. Less than a minute each occurrence. Still having strong urge to pee during the day and am able to make it to the bathroom most times (+80%). At night still getting up 7 to 8 times to pee. Same as the day if I get up when urge hits I can get to the bathroom before having to urinate into the pee pad most times. Have a follow-on prostate MRI scheduled for 9 June. Will ask DR S if enough time has expired for all to heal so a “good” MRI can be taken.
UPDATE 06-09-21 – Had early 0815 appointment with DR. Busch. Arrived and did some paperwork and they had me drink 3 bottles of water to get my bladder full. After the 3 bottles of water, and a short wait, got prepared to have an MRI. MRI finished about the same times as the urge to urinate was starting to get intense.
Went to the restroom and emptied my bladder as much as I could and then back for another MRI.
Completed the second MRI and back to the waiting room so DR. Busch had some time to evaluate the 2 MRIs.
Was called back to DR. Bush’s office and he went over the 2 MRIs with me. My interpretations of what he said were:
- It appeared that DR. X had performed a TRUP.
- The “before urination” MRI and the “after urination” MRI showed little change in the volume of urine in the bladder indicating that the bladder was retaining urine.
- Sphincter muscle between the bladder and prostate had a significant amount of muscle cut out to allow urine to drain freely out of the bladder into the prostate.
- The sphincter muscle between the bladder and prostate was now ineffective and did not function and hold urine in the bladder until urination.
- The secondary lower sphincter muscle downstream was doing ALL the work now.
- DR Busch asked about a clip that showed up on the Jan 21 CT scan. This was from the PAE.
- He again mentioned my large prostate and said he would take some time to further evaluate my situation and make recommendations on possible ways forward to at least remedy that issue.
- DR Busch provided a prescription for a prostate medication that he felt may help any issues arising from the enlarged prostate.
UPDATE 7-5-21 – Staring on 7-4-21 change in urination amount and bloating. Recent frequency has been on average 1.5 to 2 HRS apart at night but prior to 7-4-21 a significant amount of urine was eliminated at those times. Now minimal urine is released. It seems that I have started to “retain” urine, but release enough to eliminate the “urge to pee” feeling. I did have a very minimal amount of blood staining a few days ago. I am wondering if there is some plugging that is holding back the free flow of urine now. Has not got to the point that I have had to make a trip to the ER yet.
7-8-2021 – Had DR appointment with new DR. Issus of the last few days seems to have corrected itself and I do not appear to be retaining urine at this time. Appointment went well and will see DR in six months pending no issues developing between now and then.
7-24 2021 - Was peeing blood yesterday. Bright red with clouts at the start of the day. Seems to have resolved itself overnight as no blood or clouting seen today. Frequency same. Every 1.5 to 2 HRS.
TODAY (8-11-21)- Still getting up every 1.5 to 2 HRS at night to pee. Not wearing the depends but still use one pad a day to catch any leakage. Seem to be getting better verrrrry slowly and have no idea if I will ever get back to where I was at.
THOUGHTS - OLD Dr said he could not get into the bladder to take care of the possible kidney and bladder stones with out doing what he did (TURP). IF I had known that I would NOT have approved that procedure.
Original PAE was helping, but the UNC DR did advise that due to the size of my prostate a second PAE may be required. I was good with that and I would have done that again in a heart beat as opposed to the TURP.
My OLD URO apparently had no idea what a PAE was and the horrible outcome that would develop after doing a TURP.
Based on my experience with a TRUP I would never recommend that unless it was absolutely the last option on the table.
I am still considering my options and will see where things are in another month or 2.
To your questions:
1. Stream was getting better but one factor is size of your prostate (mine was around 200gms) and more than one PAE may be required for a LARGE PROSTATE.
2. Good news is that the PAE HAD NO IMPACT ON MR. HAPPY
Hope this helps...
DaytonaJonah
Active Member
WOW! What a journey. So, if I'm reading things right, somewhere in this process for you, you had a TURP...and it was done without your approval/knowledge?(perhaps I'm misunderstanding).Been meaning to update so here goes:
This is a long story and I will try to shorten it down:
Was having some lower back issues and CT was schedule.
01-18-2021 – CT scan. Scan identifying bladder stones and small kidney stones. Sent report to my urologist and asked input and suggestions. Office contacted me about having them removed on 01-29-2021. Based on my last similar issue (had stones removed bay same DR a bit back) I felt comfortable going forward and have the procedure done.
01-29-2021 - I had bladder stones removed once before and when I woke, I was discharged and took my designated driver out to eat. This time a woke with a foley cath and leg bag and the nurse giving me the large HOSPITAL bag to use at night. Post OP instructions were minimal.
I used the HOSPITAL bag almost full time and only once or twice did I leave my home with the leg bag. When I did it seemed to increase blood in the urine. HOSPITAL bag seemed to minimize somewhat the blood in the urine. Stayed home on sick leave till the next appointment. At no time did the urine get clearer than fruit punch color.
02-05-2021 - Afternoon appointment at DRs office to have cath removed. Leg bag CLEARLY had a LOT of blood still being discharged into the bag. Cath was removed anyway.
02-05-2021 – Around 1700 that day I was at the local Medical Center ER having the cath put back in as I was unable to pass urine. Advised to let DR know on Monday.
02-06-2021 – Back in ER AT AROUND 1730 as cath had gotten blocked and I was unable to pass urine again. Cath was flushed to remove a clot.
02-08-2021 – As I recall I contacted the DRs office and advised what had happened over the weekend. I was contacted and advised to keep the foley in and come in to the office on 02-15-2021.
02-14-2021 – Another trip to the ER in the afternoon due to blocked cath.
02-15-2021 – Arrived for my appointment with the leg bag on. I think the intent for this appointment was to remove the cath and the stent that was inserted at the time of the procedure that was done on 01-29-2021. DR looked at the bag and said he could not remove the stent as he would not be able to see it due to all the blood (my interpretation). Things got quiet after that as I asked what the way ahead was, as I still had a cath and there was still bleeding. There was no clear answer and I was unsure what had gone south and why.
I did mention to the DR that I had a phone follow-up with the DR that had done the PAE and he indicated that If I had been up in the Chapple Hill area, he could have done another PAE and might have been be able to resolve the bleeding issue (my interpretations). As I recall I gave the DR a copy of the PAE operative report so he would be able to understand what had been done. I was leaving all options open at this point.
02-15-2021, 02-17-2021, 02-22-2021 and on 03-02-21 – Questions posted on the Patient Portal.
Later that day at home (02-15-2021) I collected my thoughts and posted some questions to the Patient Portal.
No response.
I posted additional questions with no response.
I was getting very frustrated as I was still on sick leave from work and still had a cath in and NO clear idea of what went south or a way ahead. I did get a bit aggressive with folks DUE TO NO RESPONSE TO ANY OF MY QUESTIONS.
Due to lack of ANY response from current DR I did reach out to UNC to get on schedule for another PAE to stop the bleeding.
02-19-2021 – I became very frustrated sitting in my recliner with a hospital cath bag and NO responses to ANY of my questions and with NO clear resolution in sight I reached out to the local Hospital in the morning and indicated I wished to file a grievance against my DR. Hospital said that the DR was not staff to the hospital but they would relay my concerns to the DRs office.
Around noon I received a call from 2 individuals from the DRs office and they asked what my concerns were. I explained my concerns with NO clear solution to the situation at hand and my frustration at receiving NO responses to my questions that I posted on the patient portal.
DR finally called me at home that Friday (around 1730) and he was extremely upset that I called the hospital and that I had wasted 1 ½ hours of his staff’s time on phone calls. I explained my concerns about lack of information and NO responses to my questions and my concerns about solutions and any impact local solutions would have on the PAE that had been done. I provided him the name and number of the physician that had performed the PAE at UNC and asked that he, at least, contact him and discuss my current situation and determine any impact on the PAE based on what he had done and any future impact based on anything that he might be able to do locally to resolve the current situation.
02-22-2021 – DRs surgery nurse called and said that the DR could do another fulgurization on Wednesday to stop the bleeding. I asked if I would still need the PAE I had scheduled. The nurse said YES. I asked if the PAE would resolve the bleeding issue and would I still need a fulgurization. The nurse said she did not know. I asked her to ask the DR to call UNC and speak with the DR that did the PAE to determine if a PAE would resolve the issue at hand.
02-23-2021 – DRs office called and said that the DR had reached out to the DR at UNC that did the PAE and they both felt that another fulguration was need and could I be at the local Hospital Outpatient facility that Wednesday. I said yes. I then CXLED my scheduled second PAE based on the above.
02-24/25-2021 - Arrived with my designated driver expecting an outpatient procedure but the DR had me admitted overnight with a bladder flush till around 0930 on the morning of 02-25-2021 when the cath was removed.
DR said that it was apparent that I had lost confidence in him and that I needed to find another DR AFTER THIS. I understood that to mean that he would not see me or interact with me at any level once I was discharged that morning.
Discharge paper indicated NO follow-up appointment. I was discharged with minimal post op instructions on what to expect, such as need for pads and incontinence, etc. after having a cath in for a month.
2-25-2021 – CERTIFIED LETTER was sent to me stating that “the DR has terminated our patient/physician relationship and will no longer be able to treat me effective 25 Feb 2020, with the exception for emergency care only up to 25 March 2020”.
02-25-2021 TO 03-21.
03-28-21 - I started back on coumadin and will see what happens.
- Continued incontinence.
- Have to wear pads. Using approximately 15 or more Depend MAXIMUM guards per day along with Depends REAL-FIT underwear.
- At no time was ANY information EVER provided reference side effects, incontinence, timeline to get back to a normal condition, ETC. I had to figure it all out on my own.
- Still have NO idea if the incontinence will ever stop.
- Daytime urge and 10 or 20 seconds later urine is released.
- NIGHT - (10 or 11 till 6 or 7 in the morning) 2 or 3 times per hour and it seems more urine discharges.
- Day urge to urinate MUCH more frequently than at night but same short window.
- MINOR red blood DISCHARGE when theses urges hit has been reduced.
- Two conditions when urge hits:
- At times I still see small pieces of clout and very little urine discharged.
- Other times significant urine discharge as compared to 1 above.
I went back to work BUT spending as much time running to the latrine to change pads as I do at my desk now.
03-23-2021 – I had a 3T-MRI done at the Bush Center in Alpharetta GA. to try and determine what was hosed up.
Based on a quick look of the scan (my interpretations of what was said):
Prostate still completely engorged with leaked blood.
pooling urine in the urethra section that goes through the prostate.
May be some damage to the urethra.
May be some damage to the sphincter muscle between the bladder and prostate.
May be 8 to 12 weeks before things completely heal.
Then return for another scan and see what it all looks like then.
03-21 – Finally had an office visit with my NEW URO. He indicated that he had planned to do a scope and see what things looked like, but after reviewing all that had been done he said that was not advisable. I told him that I had seen DR Busch for an MRI and DR Busch said it would be 8 to 12 weeks for everything to heal and get back to normal before he could do another MRI. Currently the prostate was still engorged with blood, and the blood would have to be reabsorbed back into my body to get a clear MRI. NEW URO agreed with that. I was given a prescription for medication to help with the bladder spasms and it was agreed to set up a follow-on appointment in 2 to 3 months and then re-evaluate the situation.
03-21 – I also had a tele consult with a URO from UAB. We discussed my current situation and he agreed with both DR Bush and my new URO that we needed to wait 2 to 3 months for healing to take place and then see. I expressed my concerns to him about the possibility of damage to the sphincter muscle going into the prostate. I explained to him my dealings with incontinence and he said it appeared that the sphincter muscle may not have been damaged and my main issue now was bladder spasms. Reevaluation after 2 to 3 months to reassess my situation was warranted.
05-02-21 – Things seemed to be improving with less bladder spasms. Having enough time to get to the toilet to pee about 75% of the time. Still have about 25% of the time when I do not have time to get to the toilet. Still getting up every 1 to 1.5 HRS at night to pee. Seems to be getting longer between urges to pee. Use of pads has been reduced, but I still need them for about 25% of the time now.
Last week or so I started having fresh blood clots and bloody urine when I start to pee. Sometimes a lot of blood and clot at the start and other times a minimal amount of blood and clot. I stopped my blood thinner on 04-30-21 to see if that might eliminate the blood and clots and let wherever the blood is coming from heal. After about a week blood clots stopped and the bloody urine also stopped.
05-18-21 – Getting bloated during the day and seem like I am not voiding bladder completely as am out voided each time does not seem to be much. Less than a minute each occurrence. Still having strong urge to pee during the day and am able to make it to the bathroom most times (+80%). At night still getting up 7 to 8 times to pee. Same as the day if I get up when urge hits I can get to the bathroom before having to urinate into the pee pad most times. Have a follow-on prostate MRI scheduled for 9 June. Will ask DR S if enough time has expired for all to heal so a “good” MRI can be taken.
UPDATE 06-09-21 – Had early 0815 appointment with DR. Busch. Arrived and did some paperwork and they had me drink 3 bottles of water to get my bladder full. After the 3 bottles of water, and a short wait, got prepared to have an MRI. MRI finished about the same times as the urge to urinate was starting to get intense.
Went to the restroom and emptied my bladder as much as I could and then back for another MRI.
Completed the second MRI and back to the waiting room so DR. Busch had some time to evaluate the 2 MRIs.
Was called back to DR. Bush’s office and he went over the 2 MRIs with me. My interpretations of what he said were:
UPDATE 6-27-21 – Meds seem to help. Still getting up at night on average every 1 to 1.5 hrs. Some ability to “hold” urine back, but still have a small amount of urine that leaks out when I “hold back” to get to the restroom. Still bloating throughout the day, then slowly resolves in the evening hours as I urinate (bladder urine retention during the day?)
- It appeared that DR. X had performed a TRUP.
- The “before urination” MRI and the “after urination” MRI showed little change in the volume of urine in the bladder indicating that the bladder was retaining urine.
- Sphincter muscle between the bladder and prostate had a significant amount of muscle cut out to allow urine to drain freely out of the bladder into the prostate.
- The sphincter muscle between the bladder and prostate was now ineffective and did not function and hold urine in the bladder until urination.
- The secondary lower sphincter muscle downstream was doing ALL the work now.
- DR Busch asked about a clip that showed up on the Jan 21 CT scan. This was from the PAE.
- He again mentioned my large prostate and said he would take some time to further evaluate my situation and make recommendations on possible ways forward to at least remedy that issue.
- DR Busch provided a prescription for a prostate medication that he felt may help any issues arising from the enlarged prostate.
UPDATE 7-5-21 – Staring on 7-4-21 change in urination amount and bloating. Recent frequency has been on average 1.5 to 2 HRS apart at night but prior to 7-4-21 a significant amount of urine was eliminated at those times. Now minimal urine is released. It seems that I have started to “retain” urine, but release enough to eliminate the “urge to pee” feeling. I did have a very minimal amount of blood staining a few days ago. I am wondering if there is some plugging that is holding back the free flow of urine now. Has not got to the point that I have had to make a trip to the ER yet.
7-8-2021 – Had DR appointment with new DR. Issus of the last few days seems to have corrected itself and I do not appear to be retaining urine at this time. Appointment went well and will see DR in six months pending no issues developing between now and then.
7-24 2021 - Was peeing blood yesterday. Bright red with clouts at the start of the day. Seems to have resolved itself overnight as no blood or clouting seen today. Frequency same. Every 1.5 to 2 HRS.
TODAY (8-11-21)- Still getting up every 1.5 to 2 HRS at night to pee. Not wearing the depends but still use one pad a day to catch any leakage. Seem to be getting better verrrrry slowly and have no idea if I will ever get back to where I was at.
THOUGHTS - OLD Dr said he could not get into the bladder to take care of the possible kidney and bladder stones with out doing what he did (TURP). IF I had known that I would NOT have approved that procedure.
Original PAE was helping, but the UNC DR did advise that due to the size of my prostate a second PAE may be required. I was good with that and I would have done that again in a heart beat as opposed to the TURP.
My OLD URO apparently had no idea what a PAE was and the horrible outcome that would develop after doing a TURP.
Based on my experience with a TRUP I would never recommend that unless it was absolutely the last option on the table.
I am still considering my options and will see where things are in another month or 2.
To your questions:
1. Stream was getting better but one factor is size of your prostate (mine was around 200gms) and more than one PAE may be required for a LARGE PROSTATE.
2. Good news is that the PAE HAD NO IMPACT ON MR. HAPPY
Hope this helps...
I just met yesterday with a local urologist and he has the ability to do a TURP or a PAE along with other procedures to help with my 86gr. size prostate. His first choice was to do a TURP. However, the only issue I'm having is urine flow and frequent trips to the bathroom at night.
I think I would prefer the PAE as a first procedure. From what I've read from your story is that you had no issues with your PAE.
1. YEP PAE first then a TURP on top of the PAE.
Hmmmm URO doing both? I want to think that PAEs are done primarily by vascular specialist Process similar to having a stent put in the heart but they inject little balls of stuff into one of your arteries, on each side, feeding part of your prostate.. The DR that did mine at UNC has a LOT of experience and TOP tier.... Might want to reach out for a consult. NO CATH after PAE procedure. A GOOD thing... I would be asking your URO how many TURPs has he done and will you have a cath in for a time. Do your homework on TURPs and what is done. MY prostate was/is twice as large as yours
2. Yep. I am keeping all options open until I see if any more improvement. I still have homework to do and need to review the form package that you sign before any procedures are done, to see what the stinking small print says. A lawyer consult may still be in my future.
Hmmmm URO doing both? I want to think that PAEs are done primarily by vascular specialist Process similar to having a stent put in the heart but they inject little balls of stuff into one of your arteries, on each side, feeding part of your prostate.. The DR that did mine at UNC has a LOT of experience and TOP tier.... Might want to reach out for a consult. NO CATH after PAE procedure. A GOOD thing... I would be asking your URO how many TURPs has he done and will you have a cath in for a time. Do your homework on TURPs and what is done. MY prostate was/is twice as large as yours
2. Yep. I am keeping all options open until I see if any more improvement. I still have homework to do and need to review the form package that you sign before any procedures are done, to see what the stinking small print says. A lawyer consult may still be in my future.
Blackhawk
Member
My own research is more than a year old now, but I was tending towards HOLEP if the need arises to open things up. It is harder to find/access, but better outcomes with less complications than TURP. @madman posted references to HOLEP in several posts.
For now, glad I don't "need" anything for my prostate. The 5mg cialis is keeping things flowing, and my CLL seems to be in check (MRI "in bore" biopsy diagnosed CLL infiltration of the prostate), but PSA has risen to 11.2. I am getting another selectMDX test sample taken Friday.
EDIT: Sorry Oren that this post is about me. I just think that other options rather than having a doctor decide to perform something you never agreed to are worth consideration. And I do respect that you chose PAE.
And to you personally, I think we have similar outlooks on the urology profession and need for specialized care like Busch offers. I am so sorry with all your effort and due diligence regarding getting the right care for your prostate, that this happened to you. Best wishes for continuing recovery!
For now, glad I don't "need" anything for my prostate. The 5mg cialis is keeping things flowing, and my CLL seems to be in check (MRI "in bore" biopsy diagnosed CLL infiltration of the prostate), but PSA has risen to 11.2. I am getting another selectMDX test sample taken Friday.
EDIT: Sorry Oren that this post is about me. I just think that other options rather than having a doctor decide to perform something you never agreed to are worth consideration. And I do respect that you chose PAE.
And to you personally, I think we have similar outlooks on the urology profession and need for specialized care like Busch offers. I am so sorry with all your effort and due diligence regarding getting the right care for your prostate, that this happened to you. Best wishes for continuing recovery!
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ALL input is GOOD input. I wanted the LEAST invasive procedure to try and PAE was it. I do not (at present) have any other conditions such as negative MRIs or biopsies that would have complicated the process to determine the LEAST invasive procedure to try and mitigate my situation. I would have even done a "round #2" as the DR did indicate it might take another PAE to get the prostate to a manageable size due to its large size. The procedure was a piece of cake as opposed to some of the other procedures such as TRUP. Right now I am in the "wait and see" mode with the prostate. More to follow
as opposed to some of the other procedures such as TRUP. Right now I am in the "wait and see" mode with the prostate. More to follow Hello ALL...
Been some time and an update is clearly due.
Been about a year since the QUACK did the TURP.
I was still using pee pads (the small ones) and getting up every 1.5 to 2 hrs a night to pee. Same during the day.
Just PRIOR to the QUACK doing the TURP I was going to schedule round #2 PAE. Put me behind by a year
I reached out to Dr Isaacson and he was no longer with UNC. He had opened a private practice and did take my insurance!
SIGN ME UP SCOTTY
9 hr road trip to Prostate Centers USA-Raleigh on 10 April 22.
Stopped at EVERY rest stop on 85 from Montgomery to Raleigh to pee
Procedure done on following Monday (11 April 22) (in-office, out patient) and back to my hotel room.
Stayed one more night "just in case" any issues.
Drove back to Atlanta on Tuesday (5.5 hrs) and stayed for 2 nights.
Headed back home on Thursday (4.5 hrs) and took Friday off from work also.
So now my prostate is going WTF just happened
O.K. Depends needed for a few days.
Now using the MAXI pee pads.
Time to pee varies and will take a bit of time to kick in.
This time went in through the femoral artery in the leg.
I was in LaLa land so did not notice / feel a thing.
Used one of those biodegradable plus to fill the cath holes.
Worst part was having to lay there and not move my right leg for 2 hours as the plug did its thing
After the 2 hrs I was let out of jail and the Daughter and I went and had breakfast
I will update as things change.
I expect it will take a bit of time to see if this procedure helps.
I hope so as next would be slicing and dicing
Been some time and an update is clearly due
.Been about a year since the QUACK did the TURP.
I was still using pee pads (the small ones) and getting up every 1.5 to 2 hrs a night to pee. Same during the day.
Just PRIOR to the QUACK doing the TURP I was going to schedule round #2 PAE. Put me behind by a year
I reached out to Dr Isaacson and he was no longer with UNC. He had opened a private practice and did take my insurance!
SIGN ME UP SCOTTY
9 hr road trip to Prostate Centers USA-Raleigh on 10 April 22.
Stopped at EVERY rest stop on 85 from Montgomery to Raleigh to pee
Procedure done on following Monday (11 April 22) (in-office, out patient) and back to my hotel room.
Stayed one more night "just in case" any issues.
Drove back to Atlanta on Tuesday (5.5 hrs) and stayed for 2 nights.
Headed back home on Thursday (4.5 hrs) and took Friday off from work also.
So now my prostate is going WTF just happened
O.K. Depends needed for a few days.
Now using the MAXI pee pads.
Time to pee varies and will take a bit of time to kick in.
This time went in through the femoral artery in the leg.
I was in LaLa land so did not notice / feel a thing.
Used one of those biodegradable plus to fill the cath holes.
Worst part was having to lay there and not move my right leg for 2 hours as the plug did its thing
After the 2 hrs I was let out of jail and the Daughter and I went and had breakfast
I will update as things change.
I expect it will take a bit of time to see if this procedure helps.
I hope so as next would be slicing and dicing
Update time
Still having issues and still using maxi pads
Still getting up multiple time at night to pee.
Might have some bladder or kidney stones
Just had a CT scan and will see the new URO as I ck for cxl appointments to move up. Had an appointment last week and follow-up was scheduled for 17 NOV !!!! Did the CT scan last Friday.
Called today and there was a cxl so I am moved up to 21 OCT now.
Will continue to call to ck on cxled appointments to see if I can shorten the time even more.
DR said depending on the CT scan he may want to go in a look around
More to follow.....
Still having issues and still using maxi pads
Still getting up multiple time at night to pee.
Might have some bladder or kidney stones
Just had a CT scan and will see the new URO as I ck for cxl appointments to move up. Had an appointment last week and follow-up was scheduled for 17 NOV !!!! Did the CT scan last Friday.
Called today and there was a cxl so I am moved up to 21 OCT now.
Will continue to call to ck on cxled appointments to see if I can shorten the time even more.
DR said depending on the CT scan he may want to go in a look around
More to follow.....
Time for an update:
PAEs (2) did what they were supposed to do.
My guess is my continuing issues are the result of the slicing and dicing that was done on me by an incompetent URO.
Time between peeing is average of every 2 hours 24/7. Sometime 3 hours or so, other time 1.5 hours. At least at this point I do have a bit of time to get to a bathroom once I have the urge to pee. I can hold it some, but I then have leakage
till I get to the bathroom. I am going to ask my current URO to order me a Urodynamic test that should pinpoint what is going wrong. Will see if he agrees, and if not I have another route to get one ordered.
Current URO did a scope and said the plumbing looked good.
I had another MRI done in DEC that did not flag anything out of the ordinary (URO did not want to do, so I had my primary care physician put the order in).
I still feel that a PAE is a viable option for someone with an enlarged prostate (Maby not as large as mine was) for BPH.
I think the 2nd PAE was working, and BPH symptoms were slowly going away, then the slicing and dicing screwed it all up.
More to follow
Time for an update:
PAEs (2) did what they were supposed to do.
My guess is my continuing issues are the result of the slicing and dicing that was done on me by an incompetent URO.
Time between peeing is average of every 2 hours 24/7. Sometime 3 hours or so, other time 1.5 hours. At least at this point I do have a bit of time to get to a bathroom once I have the urge to pee. I can hold it some, but I then have leakage
till I get to the bathroom. I am going to ask my current URO to order me a Urodynamic test that should pinpoint what is going wrong. Will see if he agrees, and if not I have another route to get one ordered.
Current URO did a scope and said the plumbing looked good.
I had another MRI done in DEC that did not flag anything out of the ordinary (URO did not want to do, so I had my primary care physician put the order in).
I still feel that a PAE is a viable option for someone with an enlarged prostate (Maby not as large as mine was) for BPH.
I think the 2nd PAE was working, and BPH symptoms were slowly going away, then the slicing and dicing screwed it all up.
More to follow
Time for an update!
I am STILL peeing ever 1.5 to 2 hrs DAY AND NIGHT I reachd out to the URO Department at UAB and had a uroflow test done. Results came back as Bladder Outlet Obstruction (BOO) and BPH. No other significant items identified. URO said lets try MYRBETRIQ and see if that helps. I have tried almost every other med out there with little to no impact. Same for MYRBETRIQ DR did mention BOTOX treatment next. Did a bit of reading and it appears that option has been around for some time with some success. Either BOTOX in the bladder or prostate. I did see an article that said if one has BPH bladder injections are not recommended.
ANYONE have an experiance with BOTOX for over active blader or BPH? ANyone know locations/DRS that are top notch for this procedure.
I am getting reeeeeeeeeeeeeal tired of peeing all the time and having to get up every 1.5 to 2 hrs at night!!!
That is the latest.
I am STILL peeing ever 1.5 to 2 hrs DAY AND NIGHT
I reachd out to the URO Department at UAB and had a uroflow test done. Results came back as Bladder Outlet Obstruction (BOO) and BPH. No other significant items identified. URO said lets try MYRBETRIQ and see if that helps. I have tried almost every other med out there with little to no impact. Same for MYRBETRIQ DR did mention BOTOX treatment next. Did a bit of reading and it appears that option has been around for some time with some success. Either BOTOX in the bladder or prostate. I did see an article that said if one has BPH bladder injections are not recommended. ANYONE have an experiance with BOTOX for over active blader or BPH? ANyone know locations/DRS that are top notch for this procedure.
I am getting reeeeeeeeeeeeeal tired of peeing all the time and having to get up every 1.5 to 2 hrs at night!!!
That is the latest.
Bentonville
New Member
All I can say is Help Him Lord Jesus!!!
UPDATE TIME 3-16-24
After much research I had decided to look into Aquablation. I reached out to the Emory Hospital (Atlanta) URO DEPT as they have a Urologist that does Aquablation. I had a consult and was impressed with his openness and frank discussion. We went over all the issues that I have went through and he said it looked like there was 3 options. 1> remove the prostate HMMMMM NO. 2> Aquablation and 3> HoLEP.
He did not do HoLEP but another DR. does and as I had bleeding issues and 2 PAEs he recommended that I consult with him. I did that last week.
I was also impressed with him. He went over all the pluses and minuses of both procedures (he also does Aquablation) and I explained that my main reason for looking at Aquablation was time on the table. He explained that due to the current size of my prostate (160) the procedure time would be about the same for either procedure. He also identified Retrograde Ejaculation (RE) where semen make a right turn and ends up in your bladder BUT everything else is the same as one possible negative side. I am waaaaay past wanting to make babies so that was not an issues.
He pointed out that there would be less recovery time and I might even be released same day with no cath and in some cases an over night stay with a cath or trip back next day to remove the cath.
My research indicated a bit more recover and cath time with Aquablation.
Based on that, the answer was clear…. Sign me up Scotty for a HoLep… (Star Trek play on words). I have an appointment on 22 April and have asked to be on a wait list. If I get 2 days’ notice I will be there 4 hour drive one way and hotel time for me, but small price to pay to get this fixed.
Till next update
After much research I had decided to look into Aquablation. I reached out to the Emory Hospital (Atlanta) URO DEPT as they have a Urologist that does Aquablation. I had a consult and was impressed with his openness and frank discussion. We went over all the issues that I have went through and he said it looked like there was 3 options. 1> remove the prostate HMMMMM NO. 2> Aquablation and 3> HoLEP.
He did not do HoLEP but another DR. does and as I had bleeding issues and 2 PAEs he recommended that I consult with him. I did that last week.
I was also impressed with him. He went over all the pluses and minuses of both procedures (he also does Aquablation) and I explained that my main reason for looking at Aquablation was time on the table. He explained that due to the current size of my prostate (160) the procedure time would be about the same for either procedure. He also identified Retrograde Ejaculation (RE) where semen make a right turn and ends up in your bladder BUT everything else is the same as one possible negative side. I am waaaaay past wanting to make babies so that was not an issues.
He pointed out that there would be less recovery time and I might even be released same day with no cath and in some cases an over night stay with a cath or trip back next day to remove the cath.
My research indicated a bit more recover and cath time with Aquablation.
Based on that, the answer was clear…. Sign me up Scotty for a HoLep… (Star Trek play on words). I have an appointment on 22 April and have asked to be on a wait list. If I get 2 days’ notice I will be there 4 hour drive one way and hotel time for me, but small price to pay to get this fixed.
Till next update
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Bentonville
New Member
I had a consult with Dr. Griddley at Duke Raleigh for the HoLEP and really like him . He’s done a lot of the HoLEP procedures. It does require going through the urethra. He answered tons of questions. The HoLEP seems to be the least violent of all procedures involving actual removal of prostate tissue. I worry about the morcellation process and scarring of the urethra, however. Ask questions about that. (I then discovered the PAE with Dr. Isaccson. He’s done around 1700 PAE procedures and he called me personally on three occasions after my procedure. I’ve had positive results after four months but I still take Alfuzosin to keep the flow strong. I’ve gone from getting up six times a night to two or three at most . I pray this good effect last for some years.)
Dr I did my 2 PAEs. Yep he is a great DR that spends time with you before, during and after. He was upfront about the large size of my prostate at the time (200) and said I may need another. First was when he was at UNC, second was after he opened his current practice. PAE is TRULY NON INVASIVE AND MOST URO'S WILL NOT EVEN MENTION IT AS AN OPTION AS IT IS NOT SOMETHING MOST URO'S DO.
PAEs appear to work better on smaller prostates and not large ones like mine, but I went into it understanding that. My goal was relief with no slicing and dicing.
My significant issues developed AFTER the clown did the TURP or what ever he did.
My night time peeing has increased to about every hour or so now, so while slicing and dicing is not something I wanted it looks like only option at this time.
I have SIGNIFICANT URINE RETENTION also (300 - 400 ml) even after peeing
I have a NEW thread for this adventure here:
PAEs appear to work better on smaller prostates and not large ones like mine, but I went into it understanding that. My goal was relief with no slicing and dicing.
My significant issues developed AFTER the clown did the TURP or what ever he did.
My night time peeing has increased to about every hour or so now, so while slicing and dicing is not something I wanted it looks like only option at this time.
I have SIGNIFICANT URINE RETENTION also (300 - 400 ml) even after peeing
I have a NEW thread for this adventure here:
AQUABLATION VS HoLEP.
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