UK Member, New to Nebido, Frustrated by NHS

[Alberto83]

Hi, I'm new to this forum, and need some advice. It's taken me a long time to get to the point where my endo has agreed to give me trt, one shot of nebido every 14 weeks. I'm around 6 weeks in to my first shot and feel no benefits at all in fact any effects are negative, tiredness, brain fog loss of libido the usual, just as it's been for years. It took me years of begging my Gp to even see an endo because they were adamant i was depressed and tried to push Ssri's onto me which I flatly refused. This gp actually seemed offended I cared about my health. Without being sexist I explained to this woman that there's no possible way of her knowing how I feel, a 33 year old man who's felt this way for years and quality of life is crap! Long story short I got bloods done, which showed low test although technically 'normal', which again made it harder to get them to help. I ended up self medicating with 100mg test enanthate for a few weeks and noticed my life was coming back in many ways, tangible benefits. When I seen my endo I was up front with him and told him I'd felt I no other options but to go down this route. He initially wanted a repeat blood test and a follow up appointment in 6 months and prescribed tamoxifen as I had a small hard lump behind my nipple- there from puberty really that came and went randomly I got it checked out by a breast cancer specialist who said it was a little gyno, and she actually said avoid protein shakes as they can cause this! You coudknt make it up! Anyway guys so I'm basically after some help, I'm not feeling any benefit on nebido at all, from the research I've done it maybe works for 50pc of guys and then it seems to take months or perhaps years to level out even for the guys it does work for. Am.i being quacked? The endo seemed sympathetic but a bit clueless to be honest. Side note I've never taken steroids or anything like this before, im.not into getting big it ain't my thing, any aesthetic improvements I'd see as a bonus not an aim in itself. I train like a mofo and always wondered why Im.not as strong and as ripped as other guys i train with despite eating clean and training martial arts most days of the week. I could have had low t for years it's only last couple of years I've had it confirmed. I will post my bloods from Dec 2016, please can I get some advice to how bad this is?! When I saw my endo in April he said my results had improved a little but by then as I said I felt for the sake of my health I need to self administer trt. I can understand why he perhaps said nebido was the way forward, as it's less often, he said the days of sustanon every 2 weeks were over and this was mandatory nhs protocol now. Ive got a further bloods scheduekd for early august and next nebido is due mid aug. Needless to say I'm probably going to end my nebido script as i feel awful already and have many more weeks of feeling worse before they consider giving me another shot. Really need some help guys, not sure I can stick this out even the first few weeks of nebido I felt no positive feelings. I certainly did when I was doing 100mg a week even if it was only for 4-5 weeks.
Has anyone been in similar situation? The irony is I'm prob one of the lucky ones to even get this far with the was the nhs is!
Here is bloods from 23 Dec 2016:

Beta HCG <1 IU/L
LH 4.0 IU/L
FSH 5.8 IU/L
Prolactin 140 mlU/L
Testosterone 10.6 nmol/L
SHBG 36 nmol/L
Free test 255 pmol/L
TSH 2.39 mU/L
Free T4 18.4 pmol/L

"Free testosterone in normal range, though at lower end of normal. Repeat bloods in 6months time"

Any help from you knowledgeable guys mich appreciated!

Peace

 

[CoastWatcher]

Welcome to Excelmale. I'm sorry you are dealing with what so many of our UK members encounter.

We we need some additional information. How old are you? Can you post the reference ranges for the test results you provided? Are those the most recent tests? Was your thyroid evaluated? Finally, do you have the resources to see a private doctor in Dorset, a friend of the Forum, who really understands TRT?

 

[Alberto83]

Hi thanks for reply,

I'm 33, probably had symptoms related to this for 7-8 years or so. Yes thyroid was checked so secondary hypohondism was the diagnosis - although as i mentioned my Gp disagreed and tried to force antidepressants on me.
I don't have a reference range sorry, I'm sure I read somewhere that the free test level threshold is 250 so if mine made 255 technically it was normal but of course that isn't normal for an otherwise healthy 33 year old. I believe i also read that the test level of between 10-12 suggests trt is recommended and anything below 10 trt should most definitely be started. I did have more bloods taken around march/April yet I didn't see the result my endo just told me it had went up slightly..but i felt I was past getting into a numbers game with him. I think the reason it increase slightly is because he prescribed tostram gel which I used for around 2 months. But on his advice I discontinued because I noticed nipple swelling again, which now seems to be random but at the time he thought was linked. I think his plan was to get me back on gels but I told him it was just not practicable with a newborn baby and my lifestyle, which is why he kind of reluctantly went with nebido. From what I gather the recommended 12- 14 weeks between shots is too long and the last few weeks are hell, I'm feeling this now after around 6 weeks so a long time to go, but apparently this is the nhs box ticking exercise they need to see your bloods when they're really low, and some of the luckier guys after doing this a few times manage to convince their endo to bring down the period to 8 weeks or so.
To your other question I have resources to see a private doc however I'm in the complete opposite end of the country!

 

[CoastWatcher]

The reference ranges for your lab work?

 

[Alberto83]

Sorry mate all the info that I've written below is exactly what is on the sheet I got from my doctor. The results from march/April I don't even remember what they were apart from when he showed them to me on the screen for a second and said basically a small change upwards. But as I was already in 'normal' range it was irrelevant. Sorry I don't have more info this is why I've joined the forum because I'm new to all this, I don't know if you're from the UK or US but in my area a docs appt really is you get what you're given, don't ask questions, don't question my judgement eye. It's really difficult man, I've found out more stuff and info on excel male and t nation if I haven't have been armed with such info I would bet I'd have been dismissed at every stage of health appts, which as I mention has taken years to even get to this point.