Any have Grave’s?

[Checkdis]

Seems I am struggling with an autoimmune response causing my thyroid to be hyper. Is anyone struggling with this? Curious if you went into remission or what type of treatment course & life style changes. Currently I am first avoiding gluten, and taking 5mg Methimazole everyday.

 

[Vince]

This is just my opinion. My wife had Graves disease (She passed about 13 years ago). They destroyed her thyroid with radioactive iodine and then treated hypothyroidism with just T4. It totally messed her up. I think it's better to be hyper then hypo and treated it with meds. If that is impossible I would think surgery would be the next option.

I definitely agree with giving up grains.

 

[Checkdis]

This is just my opinion. My wife had Graves disease (She passed about 13 years ago). They destroyed her thyroid with radioactive iodine and then treated hypothyroidism with just T4. It totally messed her up. I think it's better to be hyper then hypo and treated it with meds. If that is impossible I would think surgery would be the next option.

I definitely agree with giving up grains.

yes I remember you discussing this with me in previous threads. Unfortunately with all my research, hypo is more controllable than hyper. The proper direction for me is to remain on Methimazole and adjust with blood work for 1-2 years maybe more. If my antibodies are suppressed then I am in good shape. If not the surgery for removal is invasive but the best bet. Although I have heard stories of the thyroid growing back.

it is unfortunate to be the only active member to experience this. It seems I will be the one to document my steps here.

@Nelson Vergel
Million dollar question which seems to confuse a lot of specialists and I welcome any on this forum to formulate a theory is... Why was I experiencing hyperthyroid symptoms for 2 years, with normal TSH, FT4, and FT3? I never had an abnormal reading except elevated RT3 and TPO. My thyroid resembled optimal levels...

Looking back now I am lucky to be a live with the thyroid storms I was experiencing... high blood pressure, fast resting heart rate, thinning hair, dry skin, anxiety, frequent urination (OAB), frequent bowel movements. Pretty much everything that points to a hyperthyroid but with optimal levels.

I have theories of how this started, but how is it possible to have these symptoms and not show abnormal levels of the thyroid?!?! For so long and so many tests. Nothing raised any flags.

 

[Vince]

There is one thing I'm wondering. What happen to your cholesterol levels when you're hyper. Before my wife's thyroid got destroyed and she was still hyper, her cholesterol levels became excellent. Did you notice this with your cholesterol levels?

 

[Checkdis]

There is one thing I'm wondering. What happen to your cholesterol levels when you're hyper. Before my wife's thyroid got destroyed and she was still hyper, her cholesterol levels became excellent. Did you notice this with your cholesterol levels?

My Cholesterol levels have always seem to be okay. Just my HDL was borderline low. But has corrected itself in time.