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Testosterone Replacement, Low T, HCG, & Beyond
Prostate Related Issues
PSA numbers increasing on testosterone- Should I stop TRT?
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<blockquote data-quote="fmowry" data-source="post: 190195" data-attributes="member: 38487"><p>I haven't posted here before ( don't think) but been a lurker for a few years and the info on this forum helped me start TRT a little over 2 years ago with Defy. I figured I'd chime in with actual numbers.</p><p></p><p>Baseline PSA was already elevated before I started at 3.6.</p><p>6 month PSA was 3.9</p><p>12 months PSA was 4.3 so Defy stopped my prescription until I could address the the PSA and get the go ahead from my primary or urologist.</p><p></p><p>Primary wanted a followup after 3 months off TRT and my PSA was 5.3 (but I had sex the night before). I got retested two days later and PSA was down to 4.6. My primary wanted me to get a TRUS biopsy because I also had a family history of prostate cancer on both sides. While my research led me to better options such as MRI and MRI guided biopsy I had the TRUS because my insurance wouldn't cover other options. Positive 3+4 in 3 cores. At that time (1 year ago), my insurance (Kaiser) would only OK a radical prostatectomy at my age (52) but I might have been able to get radiation covered. As I still enjoy my sex life and have read numerous horror stories on impotence and other side effects I decided to switch insurance to something that would allow me to pursue more options. Luckily my government employment allows insurance changes during open season even with pre-existing conditions so I switched to BCBS. I am in MD and Johns Hopkins is local. Plus they were starting up another clinical trial for Tulsa-Pro and that was the option I was seeking. The doc told me the trial would start in March-April and of course COVID hit. My doc was certain the trial would eventually get going and told me he had no problem with me doing nothing until he knew for sure. </p><p></p><p>Fast forward to last month and the trial was back on. Unfortunately the trial sponsor was not going to pick up the tab so I will be on the hook for 30% of the total. That was OK with me and I have since gone through all the blood work and signed on the dotted line. I had to get another MRI guided biopsy to confirm the cancer was still 3+4 per the trial guidelines. It is so I am simply waiting to schedule the procedure. The other Tulsa-Pro options are getting the procedure done out of pocket at 3 locations in the US currently for $30K or flying to Germany or Finland and getting it done for closer to $20K. Unfortunately I am not sure of the current flight restrictions for Europe.</p><p></p><p>Which brings me back to why I showed up here after being off TRT for a year. My blood work for the trial included total T and it has cratered to 160. My baseline prior to TRT was 400 with 8 Free. TRT bumped me up to 1000 with 25 free. I was on a typical Defy prescription which included T Cyp 200, 500 iu HCG and .125 anastrozole.</p><p></p><p>So now that my T is in the toilet I will be looking to fix it after I get the procedure taken care of hopefully this month.</p><p></p><p>The initial withdrawal was not too bad but I have been dealing recently with a lack of energy, poor sleep, mild depression, lower sex drive and of course an overall strength decrease. I attributed most of it to the cancer diagnosis itself plus chronic knee arthritis which will require a total knee replacement so I am in constant pain and not sleeping very well. Looks like that was only part of the story.</p><p></p><p>Anyway, I'm done rambling. Just figured I'd throw out my experience for anyone looking for another data point.</p></blockquote><p></p>
[QUOTE="fmowry, post: 190195, member: 38487"] I haven't posted here before ( don't think) but been a lurker for a few years and the info on this forum helped me start TRT a little over 2 years ago with Defy. I figured I'd chime in with actual numbers. Baseline PSA was already elevated before I started at 3.6. 6 month PSA was 3.9 12 months PSA was 4.3 so Defy stopped my prescription until I could address the the PSA and get the go ahead from my primary or urologist. Primary wanted a followup after 3 months off TRT and my PSA was 5.3 (but I had sex the night before). I got retested two days later and PSA was down to 4.6. My primary wanted me to get a TRUS biopsy because I also had a family history of prostate cancer on both sides. While my research led me to better options such as MRI and MRI guided biopsy I had the TRUS because my insurance wouldn't cover other options. Positive 3+4 in 3 cores. At that time (1 year ago), my insurance (Kaiser) would only OK a radical prostatectomy at my age (52) but I might have been able to get radiation covered. As I still enjoy my sex life and have read numerous horror stories on impotence and other side effects I decided to switch insurance to something that would allow me to pursue more options. Luckily my government employment allows insurance changes during open season even with pre-existing conditions so I switched to BCBS. I am in MD and Johns Hopkins is local. Plus they were starting up another clinical trial for Tulsa-Pro and that was the option I was seeking. The doc told me the trial would start in March-April and of course COVID hit. My doc was certain the trial would eventually get going and told me he had no problem with me doing nothing until he knew for sure. Fast forward to last month and the trial was back on. Unfortunately the trial sponsor was not going to pick up the tab so I will be on the hook for 30% of the total. That was OK with me and I have since gone through all the blood work and signed on the dotted line. I had to get another MRI guided biopsy to confirm the cancer was still 3+4 per the trial guidelines. It is so I am simply waiting to schedule the procedure. The other Tulsa-Pro options are getting the procedure done out of pocket at 3 locations in the US currently for $30K or flying to Germany or Finland and getting it done for closer to $20K. Unfortunately I am not sure of the current flight restrictions for Europe. Which brings me back to why I showed up here after being off TRT for a year. My blood work for the trial included total T and it has cratered to 160. My baseline prior to TRT was 400 with 8 Free. TRT bumped me up to 1000 with 25 free. I was on a typical Defy prescription which included T Cyp 200, 500 iu HCG and .125 anastrozole. So now that my T is in the toilet I will be looking to fix it after I get the procedure taken care of hopefully this month. The initial withdrawal was not too bad but I have been dealing recently with a lack of energy, poor sleep, mild depression, lower sex drive and of course an overall strength decrease. I attributed most of it to the cancer diagnosis itself plus chronic knee arthritis which will require a total knee replacement so I am in constant pain and not sleeping very well. Looks like that was only part of the story. Anyway, I'm done rambling. Just figured I'd throw out my experience for anyone looking for another data point. [/QUOTE]
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Testosterone Replacement, Low T, HCG, & Beyond
Prostate Related Issues
PSA numbers increasing on testosterone- Should I stop TRT?
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