Dr Justin Saya MD
Moderator
(New account just because I wanted to comment here about this)
I was unlucky enough to be born with a degenerative peripheral neuropathy that has severely atrophied many of my peripheral muscles. There is no cure or treatment to fix it. My peripheral nerves and muscles are wasting away. My skeletal structure has actually deformed due to this muscular atrophy. I've attempted to get on any clinical trials that may have medications with potential treatments or cures but have been unsuccessful in doing so. Its not that big of a deal to me because so far no clinical trial has shown any success in treating or preventing progression of the disease. It is very frustrating losing mobility with age.
In the last few years I found out that I had low T issues and began TRT w/HCG and have had great success treating the various low T problems I had. Thank you local (and expensive) clinic! Unfortunately with time many things changed and I had to try to make my TRT more affordable so I changed between doctors till I found an affordable one that I believe is competent and who actually listens to my experience and helps review my bloodwork in detail. I noted with the new Dr that I had this generative disease and I'm doing whatever I can do stay out of a wheelchair for as long as possible and I had heard about studies where oxandrolone showed some signs of improvement in people with my condition. After discussion with my new TRT provider I ended up with a prescription for nandrolone decanoate in very small doses to look for improvements.
As I just barely switched providers, I have yet to see how my personal results will be. I'm hopeful that it helps with my ability to stand, balance, squat, and do daily activities. Its truly an exciting thing for me. Not because its an anabolic steroid and I may end up with much more mass, but because it might be the one thing that keeps me mobile in the coming years. I can't fix my diseases as it progresses, but I certainly can try to prevent (or reverse?) further damage to my motor abilities! Nandrolone might be life changing to my quality of life. I just don't know yet!
Not a single neurologist or primary care physician in the last 15 years has offered me any hope of treatment. The most anyone has ever said is "stretch regularly and try to workout." I do not want to disclose what Dr or pharmacy was involved in the script, but I will answer the original question "Yes, some doctors will prescribe nandrolone with TRT" and I am so so so thankful that this medication is available to me. If that Dr is reading this, I hope he realizes how thankful I am that he considered my disease and read up on it before prescribing me anything.
Strangely becoming hypogonadal may be the one thing that has ultimately opened the door for me to seek treatment for my condition. If I had normal testosterone levels, there is no way I'd ever been have seeking out help for TRT and eventually stumbling on a Dr that was willing to try to help. As everyone who has done their homework knows, you pretty much have to have testosterone injections when using nandrolone. If I had normal T, its unlikely I would even attempt nandrolone because of the costs associated with TRT, frequent blood work, and just having to be on medications regularly. Since I'm already on TRT, the cost is minimal and the upside potential is huge as long as we follow a safe protocol.
Again - I want to thank those providers and pharmacies who do offer nandrolone to patients like me!
For those of you seeking nandrolone for joint pain. I hear you, joint pain sucks! Please understand that there are people in much worse shape than you that are facing immobility and nandrolone might be their only practical option. Please understand that if you are lucky enough to get a script for nandrolone to treat joint pain, then awesome -- great for you but don't go blabbering about how someone gave it to you offlabel when many of us might go to that same clinic or Dr and need it to get by.
Due to the fact that there is little research into my disease and anabolic steroids like nandrolone, I'll try and do a followup in 6 months discussing results. I hope we have some good news then!
I have prescribed for a couple cases of CIDP (chronic inflammatory demyelinating polyneuropathy) with fairly successful results...so you have reason to be optimistic!