Ex Propecia user help needed

Hey Coastwatcher,

Yes I had sleep apnea on my list but it was at the bottom of my priorities. I have also ordered the suggested TRT books suggested for me.

So today I saw my private endo;

- He said as far as he was concerned estrogen didn't matter but based on what I said to him he is opened minded and will do the research I have suggested and also ask a testosterone expert he knows
- He said as I have had a slight improvement on the testogel he believes its working but he is concerned about my ED
- He agreed to double my T gel doseage but wants me to see a uro before we do anything else from here
- He dismissed sleep apnea and said he didnt think it was a problem with the brain also

I said I was scared as most propecia sufferers dont get better but he assured me we will fix this and we have already seen some improvement in my general well being from t gel all be it small

Hi guys,

I received the book TRT therapy by John Crisler in the post over the weekend and have given it a good read back to front

DHEA
I read that too much DHEA in men converts to estrogen - now considering according to the forum I have super low E I decided I would supplement DHEA 100MG a day for 4 days

Now the first thing I have noticed is swelling and aching in my knees and finger jopints

Any thoughts on this guys - it may have been a stupid move but I am in a desperate situation!

Thanks
Daniel

dp1286 said:

Hi guys,

I received the book TRT therapy by John Crisler in the post over the weekend and have given it a good read back to front

DHEA
I read that too much DHEA in men converts to estrogen - now considering according to the forum I have super low E I decided I would supplement DHEA 100MG a day for 4 days

Now the first thing I have noticed is swelling and aching in my knees and finger jopints

Any thoughts on this guys - it may have been a stupid move but I am in a desperate situation!

Thanks
Daniel

Click to expand...

A good overview of DHEA. What were your levels and why did you feel you only wanted to take it for four days? Or did I misunderstand your post?

https://www.excelmale.com/forum/showthread.php?6657-DHEA-Supplementation&highlight=Dhea+dose

Hey Coast Watcher

I only started it four days ago, I don't know my levels but I read In a TRT book that excess converts to estrogen and as my E is super low I thought this may resolve some of my symptoms?

But as I said all I have felt is stiff knees and hands

Thanks
Daniel

Guys some developments that I would love your advice on;

Sleep test all normal

Saliva test for cortisol and dhea a little more exciting

Range
Sample 1 (8am) 50.49 7.45-32.56 High
Sample 2 14.74 2.76-11.31 High
Sample 3 12.04 1.38-7.45 High
Sample 4 5.07 0.83-3.86 High

DHEA Sample 1 am 1.07 0.25-2.22
DHEA Sample 3 pm 0.50 0.25-2.22 Low Normal

SecretopryIGA 4 102 - 471 Very Low

Please let me know your thoughts guys

Thanks

Coastwarcher Johndoe any thoughts guys?

No thoughts on these high cortisol results? Does it look like cushings etc?

No thoughts on these high cortisol results? Does it look like cushings etc?

dp1286 said:

No thoughts on these high cortisol results? Does it look like cushings etc?

Click to expand...

It is elevated across the day and should be pursued and discussed. When do you see your doctor and has the increased Testogel made a difference?

He wont increase the testogel until Ive seen a uro first

Does anyone have any experience of high cortisol, it looks like all the symps match mine

Im waiting to see a doctor about this

Is anyone aware of any relationship between high cortisol and low estrogen?

Also has anyone heard of high cortisol causing loss of morning erections?

Do my cortisol levels look outrageously high?

Thanks
Daniel

dp1286 said:

Is anyone aware of any relationship between high cortisol and low estrogen?

Also has anyone heard of high cortisol causing loss of morning erections?

Do my cortisol levels look outrageously high?

Thanks
Daniel

Click to expand...

Yes, cortisol levels impact erectile function. How low is low, in regard to your estradiol? Please remind me.

16-Dec-2016 ! OESTRADIOL
! Serum oestradiol level 54 pmol/L (99.00 - 192.00pmol/L

Thats my E level, I am just trying to piece together has the High Cortisol caused the Low E/

Does anyone think my Cortisol level is high enough to indicate Cushings?

dp1286 said:

16-Dec-2016 ! OESTRADIOL
! Serum oestradiol level 54 pmol/L (99.00 - 192.00pmol/L

Thats my E level, I am just trying to piece together has the High Cortisol caused the Low E/

Does anyone think my Cortisol level is high enough to indicate Cushings?

Click to expand...

Here is a diagnostic tree used to rule in/rule out Cushing's. Are you obese, with fat pad and stretch marks? That is usually seen in Cushing's.

https://arupconsult.com/sites/default/files/Adrenal Hyperfunction Testing algorithm.pdf

Guys can anyone recommend a really good TRT doctor in the UK possibly London?

I dont know what propecia has done to me but I want to get a professional opinion on my Estrogen level

dp1286 said:

Guys can anyone recommend a really good TRT doctor in the UK possibly London?

I dont know what propecia has done to me but I want to get a professional opinion on my Estrogen level

Click to expand...

The Harpal Clinic and the Centre for Men's Health both have a reasonable reputation. Harpal, I believe, may be lesser regarded than the Centre for Men's Health. You can also arrange for a consultation with Defy in the United States via telephone (following their review of your bloodwork). I would urge you to consider that course of action. In all honesty, the understanding of estradiol outside the US (and I include my home of Canada) is years behind the time.

Thanks Coastwatch - will those you have recommended have any knowledge of Propecia syndrome do you think?

dp1286 said:

Thanks Coastwatch - will those you have recommended have any knowledge of Propecia syndrome do you think?

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I really don't know. We are still trying to come to some sort of understanding about the post-finasteride syndrome, doctors and non-doctors alike. You could contact them and ask what their experience is prior to spending for an appointment.

I do know that Dr. Justin Saya, Defy's medical director is who I would turn to if I was dealing with your issues. Like you, I live outside the US (Canada) and have access to a state-sponsored medical system. That said, the complexities of the issues you present would drive me toward private care - I would choose to spend the money on someone who has demonstrated consistent skill and judgement on matters related to men's health. Whatever course of action Dr. Saya would outline would than be taken to my local doctor. I know Defy does out-of-country consultations via phone. Contact them via email, you can find information at www.defymedical.com, and see if it's something you would be interested in. I am not Dr. Saya's patient, never have been, but I am very impressed with his skill.

You have been going in circles for a long time. You deserve some informed answers.

dp1286 said:

Thanks Coastwatch - will those you have recommended have any knowledge of Propecia syndrome do you think?

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The reality is that most Doctor's will say they never heard of Post Finasteride syndrome...which is sad but true. Two of the best TRT docs in the USA (Dr. Shippen & Dr. Crisler) are both familiar with PFS but are quick to admit that the condition is extremely difficult to treat. There are claims of some on propeciahelp.com forum, to have been "cured" by doing some extreme fasting, paleo type diets, exercising, zero alcohol, etc. But just as many have tried all that with mixed results.

I sympathize with your situation & hope for the best...but just be prepared to be frustrated by the Dr's lack of understanding of PFS.

DaveK22 said:

The reality is that most Doctor's will say they never heard of Post Finasteride syndrome...which is sad but true. Two of the best TRT docs in the USA (Dr. Shippen & Dr. Crisler) are both familiar with PFS but are quick to admit that the condition is extremely difficult to treat. There are claims of some on propeciahelp.com forum, to have been "cured" by doing some extreme fasting, paleo type diets, exercising, zero alcohol, etc. But just as many have tried all that with mixed results.

I sympathize with your situation & hope for the best...but just be prepared to be frustrated by the Dr's lack of understanding of PFS.

Click to expand...

Crisler and I have shared a few PFS patients and discussed many. It is a condition that I wouldn't say is "cured", but more accurately "managed" with emphasis on attempting to achieve symptom relief. No two cases are the same as there are many variables, hormonal and otherwise, at play. Think the complexity of low SHBG cases multiplied several fold.